Defending
abortion - in law and practice (cont.)
3. Abortion for fetal abnormality
Together with late abortion,
another kind of abortion, where the procedure takes place
because fetal abnormality of some kind is strongly suspected,
has become increasingly contentious (17). In 1967, when
abortion was made legal in the UK, fetal abnormality was
construed a 'good' reason for abortion. Today the opposite
seems the case. This kind of abortion is now considered
at best ethically difficult, at worst eugenic. The problematisation
of abortion for abnormality can be discussed with reference
to three groups, whose views have, to differing degrees,
shaped the debate.
(a) The medical profession
Under British law, one exception
to the general prohibition of abortion after 24 weeks gestation
is where it is agreed that: 'there is a substantial risk
that if the child were born it would suffer from such physical
or mental abnormalities as to be seriously handicapped'.
The terms of this clause
of the Abortion Act are in line with the way medical judgement
is generally privileged in British abortion law. (In all
instances, abortion is only legal if two medical practitioners
agree that the woman meets one of the conditions for abortion
specified in the Act, all of which are framed in medical
terms). The clause that caters for abortion for abnormality
is worded in an imprecise way. There is no specification
of what is a 'substantial risk' or what is a 'serious abnormality'.
This vagueness reflects the outlook of the medical profession
at the time the Act was passed, which was reluctant to allow
parliamentarians to interfere with matters of clinical judgement.
Today, by contrast, many
in the medical profession are uncomfortable with the onus
placed on them under the law to make judgements about whether
a particular request for abortion meets the terms of the
Abortion Act. Rather than wanting to 'play God', many doctors
would prefer it more specific guidelines were drawn up to
guide them when they make decisions about whether a request
for an abortion on the grounds of fetal abnormality is legal
(18).
This has led to calls for
the creation of lists, specifying which conditions are 'serious'
and which are not. Some eminent professors have argued that
abortion in the third trimester should be deemed ethically
impermissible unless the fetus has an abnormality that can
be diagnosed with certainty as leading to early death or
cognitive developmental capacity, ruling out Down's syndrome
or spina bifida as conditions warranting legal abortion.
Whilst restrictions on the
range of conditions for which abortion is legally permissible
may relieve doctors from the pressure of having to make
difficult decisions, it is important to note the implication
of such a measure regarding a woman's reasons for abortion.
If only those conditions on a designated list are deemed
sufficiently 'serious' to enable a woman to have an abortion,
then other reasons, not included on such a list, are presumably
deemed trivial in comparison.
We have to be careful about
suggesting that a woman's reasons for abortion are trivial.
They may seem so to other people, but to her they may have
a different meaning. A senior expert in fetal abnormality
has commented about the distress he felt when presented
with a request for abortion on the grounds that the fetus
had a cleft palate. This expert made the point that he was
horrified because he thought this to be a rather trivial
abnormality - until he looked at the woman sitting in front
of him and noticed she had a severe cleft palate herself.
What he regarded as a quite trivial disability, this woman
honestly regarded as being so serious that she was willing
to put herself through the process of late abortion, and
end what she already saw as the life of a child that she
wanted (19).
(b) The disability rights
movement
The movement for the rights
of disabled people has become increasingly influential in
recent years. With the completion of the mapping of the
human genome, the prospect of the detection of a increasing
number of genetic markers has generated a great deal of
debate, which centres on the notion that 'eugenic' abortion
may result. Many disability rights activists suggest that
as knowledge increases about the human genome, it will bring
with it attempts to 'screen out' embryos and fetuses whose
genes are not 'perfect' (20).
The term eugenics is used
very loosely, and often wrongly, in discussions of abortion
and ante-natal screening today. Defined properly, eugenics
is the view that society can be improved through the manipulation
of genetic inheritance, and that social problems can be
resolved biologically, largely through the control and shaping
of human reproduction.
It could be argued that
the abortion law in Britain, when first introduced, was
motivated to some degree by a eugenic outlook. Some clauses
in the Abortion Act were possibly motivated by a desire
to tackle the social problems caused by poverty, deprivation
and hardship by shaping people's reproductive patterns (i.e.
making easier for them to limit family size), rather than
by making greater social resources available to them.
But this was not the case
with regard to the clause in the law about abortion for
fetal abnormality, which was largely a response to the thalidomide
tragedy, where the drug thalidomide was prescribed legally
to thousands of pregnant women to alleviate the symptoms
of morning sickness, but led to the birth of often severely
disabled children. The clause was a response to a situation
where women who feared they might give birth to such a child
but were unable to prevent it within the terms of the law.
Regardless of the motivation
of some of those who supported the legalisation of abortion
in 1967, today it is definitely the case that abortion is
not seen by doctors, policy makers, or women themselves,
as an aspect of social engineering. The context for abortion
today is one where its provision meets the request of a
woman who no longer wants to be pregnant. That is the case
when we are talking about the ending of unwanted pregnancies
that have been conceived unintentionally, and is equally
so where abortion for abnormality is at issue.
The overwhelming majority
of women who discover that they are carrying a fetus affected
by Down’s Syndrome currently choose to have an abortion.
A study by ante-natal screening expert Professor Eva Alberman
shows that just eight per cent of women who discover they
are carrying a fetus affected by Down’s syndrome decide
to continue the pregnancy (21).
It is not difficult to understand
why women choose to abort abnormal pregnancies. Many women
find that they feel differently about their condition when
they find their baby would be born disabled. The discovery
that the child is 'not normal' may challenge a woman's hopes
and expectations about what her future family life will
be.
A woman whose attitude to
her pregnancy changes when she finds it is affected by an
abnormality is not making a social or political statement
about the abnormality, or about born people with that disability.
She is making a statement about herself; what she feels
she can cope with and what she wants.
To accept the notion that
the views of some disability rights activists should be
able influence abortion law or policy is to privilege the
views of those who experience a condition over women who
carry fetuses affected by it. Why should one individual’s
experience of, say, spina bifida entitle that individual
to a voice in the most personal decision a woman has to
make?
(c) The anti-abortion
lobby
The argument that abortion
on the grounds of abnormality is eugenic has also been promoted,
disingenuously, by those who oppose abortion in all circumstances.
The anti-choice organisation
LIFE produces a leaflet called 'Pre-Birth Screening: Something
Wrong With Baby?' This argues that '...to destroy a child
because he or she is not perfect is especially unjust and
elitist. Of course it is not always easy to cope, but eugenic
abortion recreates and legitimises primitive phobias against
mental and physical illness just when society seems to be
making real progress in outgrowing them.' The leaflet asks
'...are we not really sending a message to the disabled:
you are inferior, you should never have been born?' (22).
The Society for the Protection
of Unborn Children makes the point that '...abortion of
the handicapped is both a reminder of the inhumanity of
abortion, attacking the most vulnerable, those most in need
of help, and an offence to the disabled, sending them the
message that they are inferior and of less value than the
able bodied' (23).
Does abortion for abnormality
encourage discrimination against disabled people? No it
does not, since it is possible to make a judgement or express
an attitude towards a particular condition, without in any
way imputing an attitude towards the value of people who
suffer from that condition.
Most people would say they
thought malaria was a bad thing, and that it would be better
if people did not suffer from it. This does not mean they
take a negative attitude towards people who suffer from
that illness. The same applies with abortion for fetal abnormality.
There is no reason to assume that a woman's choice not to
bear a child which suffers from spina bifida or Down's syndrome
implies she believes such people should not be born, or
be supported. It simply implies that she does not wish to
be a mother to one.
Issues relating to disability
rights are completely different to those relating to abortion.
At the heart of the issues of abortion (as the anti-choice
lobby knows very well) is autonomy in reproductive decision-making,
and, whether the fetus is abnormal or not, the ability for
individuals to make such decisions must be primary. In a
similar vein, the demand from some people with disabilities
to be able to screen their pregnancies in such a way that
a child with a disability results can also be defended
on the same grounds. Since women, and their partners, disabled
or not, have to live with the consequences of reproductive
decisions, they must be able to make the decisions they
perceive to be moral and appropriate.
Ultimately this is the issue
which is at the heart of the abortion debate. However, the
failure of anti-choice organisations to make a convincing
argument against reproductive autonomy means they now try
to duck the issue, and instead cloak their arguments in
the language of disabled rights.
4. Is abortion a health
risk?
(a) Physical health
Much evidence exists which
attests to the low rate of risk to physical health associated
with abortion. In 2000, the British Royal College of Obstetricians
and Gynaecologists (RCOG) published an evidence-based guideline,
The Care of Women Requesting Induced Abortion (24).
Based on systematic literature
review, and synthesis of the best available research results,
the guideline advises that women considering abortion should
be given certain information on the possible complications
of abortion. For example:
- Hemorrhage at the time
of abortion is rare, occurring in around 1.5/1000 abortions
overall. The rate is lower for early abortions (1.2/1000
at <13 weeks gestation and 8.5/1000 at >20 weeks).
- Uterine perforation at
the time of surgical abortion is also rare. The incidence
is of the order 1-4 per 1000 abortions.
- The rate of damage to
the external cervical os (a small round opening at the lower
part of the cervix) at the time of surgical abortion is
no greater than 1 per cent.
- The rate for complications
is lower when abortions are performed early in pregnancy
by experienced clinicians.
- Genital tract infection
of varying degrees of severity, including pelvic inflammatory
disease, occurs in up to 10 per cent of cases. The risk
is reduced when prophylactic antibiotics are given or when
lower genital tract infection has been excluded by bacteriological
screening.
Warren Hern, an American
specialist in abortion services and author of the medical
text, Abortion Practice, notes lower complication
rates. In various published series, Hern reports a major
complication rate (including haemorrage requiring transfusion)
of 0.2 per cent (2 per 1000) in second trimester abortion
from 15 - 34 menstrual weeks. His 30,000 first trimester
patients have experienced a major complication rate of 0.01
percent with no uterine perforations. By contrast, patients
carrying pregnancy to term in the United States routinely
experience a caesarian rate of 25 - 30 per cent, a major
complication rate more than a hundred times greater than
second or third trimester abortion and more than 2500 times
greater than that experienced by first trimester abortion
patients (25).
Regardless of the evidence
attesting to the safety of abortion, the idea that abortion
constitutes a health risk remains the subject of debate.
In particular, there has been some discussion in recent
years that abortion leads to future infertility, breast
cancer, or psychiatric illness. Women's concern about these
conditions may have been heightened by claims made mainly
by opponents of abortion.
The decreasing levels of
support for opposition to all abortion has meant that anti-choice
groups have developed a strategy that might be termed the
'feminisation' of anti-abortion argument. There has been
a marked tendency for opponents of abortion to increasingly
make their case on the grounds that abortion is bad for
women's health. In this kind of argument, the apparent motivation
for opposition to abortion stems for concern with women's
well-being. Yet scientific evidence finds no support for
these claims.
The RCOG reviewed available
evidence about breast cancer for its guideline, and found
that available evidence on an association between induced
abortion and breast cancer is currently inconclusive. They
noted, however, that the validity of the evidence gathered
from studies which compare incidence of breast cancer in
women who have and who have not had an abortion may be questionable,
because of the reluctance of women studied to reveal whether
they had an abortion.
Studies based on national
registers are less prone to inaccuracy because they do not
rely on subject recall. Such studies have not shown any
significant association between abortion and breast cancer.
The guideline therefore states that when only those studies
least susceptible to bias are included, the evidence suggests
that induced abortion does not increase a woman's risk of
breast cancer (26).
The RCOG guideline states
that women with previous induced abortion appear to be at
an increased risk of infertility in countries where abortion
is illegal, but not in those where abortion is legal. It
notes that published studies strongly suggest that infertility
is not a consequence of induced abortion where there are
no medical complications. British gynaecologist David Paintin
has observed that, in so far as abortion and reduction in
fertility are linked, a proportion of the one or two per
thousand women who have serious abortion complications are
likely to experience reduced fertility or inability to conceive
again, but not in cases where there are no complications
(27).
(b) Mental health
Assessments of the physical
effects of abortion, and assessments of the relationship
between abortion and a woman's emotional state, must be
approached differently. The key to assessing the emotional
impact of abortion on a woman’s emotional state is context-dependence.
Where a discussion is to be had of women's emotional responses
to abortion, attention must be focused on the social and
personal situation in which abortion takes place. It therefore
to makes no sense to contend that abortion has a particular,
uniform mental health outcome.
Unfortunately, in much discussion
of women's feelings about abortion, there is a general failure
to contextualise the decision to abort a pregnancy. Many
reports do not consider age, marital status, wantedness
of pregnancy, gestational age, previous reproductive history,
or sociocultural setting. These and other characteristics
can have a substantial effect on a woman's motivation and
may also influence the risk of negative psychological consequences.
The most extreme example
of a de-contextualised approach to the relationship between
abortion and emotion is the claim made by opponents of abortion
that women suffer from 'Post Abortion Syndrome'. In this
approach, rather than paying attention to the context in
which abortion decisions are made, a woman's emotions after
an abortion are pathologised as a form of mental illness.
Post Abortion Syndrome (PAS)
was initially described by Rue in 1981, in United States
Congressional Testimony, as a variant of post-traumatic
stress disorder. He claimed that psychological stressors
were capable of causing post-traumatic-stress disorder and
that: 'Post-abortion Syndrome (PAS) is a specific type of
post-traumatic stress disorder' (28). Subsequently, anti-abortion
organisations in Britain adopted Rue's approach, and PAS
has become a feature of anti-abortion arguments in British
debate (29).
According to the American
Psychiatric Association (APA), Post Traumatic Stress Disorder
(PTSD) is a disabling condition '....following exposure
to an extreme traumatic stressor involving direct personal
experience of an event that involves actual or threatened
death or serious injury' (30). Likely stressors cited by
APA as examples of PTSD include military combat, violent
personal assault, terrorist attack, and being held hostage.
Notwithstanding the substantial difficulties associated
with the PTSD diagnosis in general (31), it is quite a stretch
to claim abortion as a stressor likely to induce PTSD.
One criterion for PTSD is
experiencing '...an event that is outside the range of usual
human experience and that would be markedly distressing
to almost anyone' (32). Considering that around a third
of British women will have an abortion at some point it
can hardly be said that the abortion experience is outside
the range of usual human experience. There has been no reported
increase in public or private mental health services for
women attributing their current psychological problems to
abortion.
Many empirical studies have
been conducted to investigate the emotional aftermath of
abortion, and there is not space here to detail them all.
In one example, reported in 1995 in the British Journal
of Psychiatry, information was obtained about 13 261
British women, through volunteer GPs. This included age,
marital status, social status and previous psychiatric and
obstetric history. As a result, four comparison groups were
obtained, of 6151 women who did not request abortion, 6410
who obtained an abortion, 379 who requested the operation
but were refused and 37 who requested the abortion and changed
their minds.
In this study, GPs were
asked to record diagnoses of women they saw by grouping
psychological or psychiatric disorders into three categories:
major mental illness (including puerperal psychosis, schizophrenia,
and manic depression), minor mental illness (depression,
anxiety or other emotional disorders) and deliberate self-harm
(drug overdoes, self cutting). Key findings reported were
that in women with no past psychiatric histories there was
no significant difference between comparison groups in rates
of psychiatric illness; that women with a previous history
of psychosis were more likely to experience a psychotic
illness than those with no such history; and that termination
of pregnancy did not appear to increase the risk (33).
In another, recent piece
of research, Russo and Zierk reported findings from a US
based 1992 study, which found that the wellbeing of 773
women, interviewed annually in a national sample of 5 295
women, was unrelated to their abortion experience eight
years earlier. The study considered many factors that can
influence a woman's emotional wellbeing, including education,
employment, income, the presence of a spouse, and the number
of children. Higher self-esteem was associated with having
a higher income, more years of education, and fewer children.
Women who had experienced
an abortion in fact had a statistically significant higher
global self-esteem rating than women who had never had an
abortion. This difference was even greater when comparing
aborting women with women delivering unwanted pregnancies
(who had the lowest self-esteem). Women who had experienced
repeat abortions did not differ in self-esteem from women
who had never had an abortion. In all, the evidence confirmed
earlier findings that factors other than the abortion
experience itself determine postabortion emotional status.
Some women continually reconstruct and reinterpret past
events in the light of subsequent experience and can be
pressured into feeling guilt and shame long afterwards (34).
In the light of the substantial
amount of evidence against the existence of Post Abortion
Syndrome, it is perhaps surprising that the claim for PAS
retains any credibility. In part the continued debate about
whether or not there is such a syndrome can be explained
by the confusing degree of variation in the 'symptoms' that
are said to be associated with the putative condition.
As already noted, Rue claimed that PAS is a form of PTSD.
As such it would constitute a severe psychiatric disorder.
Yet if its occurrence could be measured on this basis, it
would be found to be non-existent.
However, proponents of PAS
tend to shift in their writings from a definition of the
PAS 'symptoms' where the proposed comparison with PTSD is
made clear, to a much broader collection of 'symptoms' that
could perhaps more accurately be described as negative feelings
(35). Rue has listed a wide range of feelings, and forms
of behavior that he argues might be evident in
women who have had an abortion.
These include feelings of helplessness, hopelessness, sadness,
sorrow, lowered self-esteem, distrust, regret, relationship
disruption, communication impairment and/or restriction
and self condemnation.
Associating this broad range
of 'symptoms' with a diagnosis of PAS opens the door to
claims that that large numbers of women may suffer from
the syndrome. As the 'diagnostic criteria' for PAS become
broader, it is easier to claim that many women may suffer
from the 'syndrome'. A link between mild and severe psychological
responses is generated: all become less serious versions
of the same response. Feelings a woman might have after
abortion, such as sadness or regret, are seen as a less
serious version of a psychiatric disorder.
If an accurate assessment
of the psychological effects of abortion is to be made,
an approach which combines psychiatric illness with negative
feeling is unacceptable. As Stotland argued in a 1992 Commentary
in the Journal of the American Medical Association,
a symptom or a feeling is not equivalent to a disease (36).
Some women who undergo abortion experience feelings of sadness,
regret and loss, but this does not mean they are suffering
from an illness.
In sum, for the vast majority
of women, an abortion of an unwanted pregnancy will be followed
by a mixture of emotions, with a predominance of positive
feelings and relief. The time of greatest stress is likely
to be before the abortion decision is made.
Evidence from the research
literature suggests that, in the aggregate, legal abortion
of an unwanted pregnancy does not pose a psychological hazard
for most women. They tend to cope successfully and go on
with their lives. There is no credible evidence for the
existence of a Post Abortion Syndrome.
Ann Furedi is director of
communications at the British Pregnancy Advisory Service
(BPAS).
Dr Ellie Lee is lecturer
in sociology at the University of Southampton, UK, and co-ordinator
of Pro-Choice Forum.
To order a hard copy of
this paper in full, email spiked-central@spiked-online.com
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